So....Have I waited long enough to ask this without wrongfully taking advantage of people's sympathy? :o) Spinal Muscular Atrophy is genetic, and not extremely common, so it is difficult to get funding to find cures and treatments for the disease. I remember after Evan died,wanting to do anything I could to help. We were poor law students, so we did a walk-a-thon and got around $5000 donated from family and friends. Then, slowly, I lost touch with FSMA (the organization) because SURELY I would never have to deal with it again. Little did I know that I would lose another adorable son to this disease. And then I also realized that Maddie is probably a carrier. And so are at least a quarter of my nieces and nephews and cousins. Not to mention all of the other families around the world that are watching their children suffer and die. And I realized I have to try again.
I would like to try to quadruple our last donation. My goal this time is $20,000. Josh and I contributed half (if you look at the top of the website, you can see Charlie's cute little picture), and I am going to try to match that with donations. So, IF YOU CAN, I would like to ask for anyone who is able to contribute through the website below. Even $5 matters!!! You pay on the website with a credit or debit card, and then there is a place for you to put the name and address of the person you are donating for. Make sure you put in our name and information (you can send it to Josh's office, 801 S. Fourth Street, Las Vegas, NV 89101) so that we can be notified and keep track of what we have earned on behalf of Charlie and Evan. And also so I can send you a big fat thank you card!
8 comments:
Very admirable, and no it isn't too soon. I don't want to see anyone lose a baby if there might be a way to avoid it.
I'll do what I can.
And I just check out the website. He IS on there!
I'll send what I can too, your story really did touch me and I'd love to help...is there a cash or a check preference?
It's not too soon...never was. It's nice to know where we can help.
Rachel, I believe you pay with a credit or debit card directly on that website.
Oh sorry, I read it wrong...I thought you meant send donations to your husband's office! Sorry about that
I read it wrong at first too. But, you pay on the site with a card, and then you can also put in the info of the family you'd like to have notified that you paid in memory of. That's where Josh's address comes into play. (You can also send in a picture of Charlie. I just went back and picked my favorite one from Rachel's blog and sent that one.)
Is there a deadline? We would love to donate too. We get paid next Friday so if it is not too late then, we will donate!!
Thanks for your touching experiences.
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